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Tajikistan -
Family Intermarriage Can Cause Birth Defects
A
child being treated for a birth defect at a hospital in Tajikistan's Khatlon
region.
By Farangis Najibullah and Orzu Karim – 21 March 2015
People in Tajikistan love their families, and it is
threatening to destroy the nation.
That's the reasoning behind growing calls to ban
marriages between first cousins, a long-standing practice that is common
throughout the Central Asian country.
Proponents of the ban argue that the offspring of
consanguineous marriages, or marriages between blood relations, run higher
rates of birth defects and genetic illnesses that could ultimately prove to be
the nation's undoing.
Detractors argue that the risks are exaggerated, that
more scientific research is needed to make a clear link between consanguineous
marriages and birth defects, and that a ban on consanguineous marriages would
not solve the problem.
In the course of a few months, the debate has risen to a
level that settling it is expected to be among the newly-elected parliament's
first tasks.
Registration Efforts
While no bill banning first-cousin marriages has yet been
drafted, support for such a measure has come in from the highest levels of
government and health authorities have already begun to take action.
On March 17, the regional Health Department in the
southern Khatlon Province announced that it had completed registering children
born with disabilities, a process that included documenting whether their
parents were related.
According to the figures, 9,700 persons up to the age of
18 were born with physical or mental disabilities in the province. Of them,
1,546 were the offspring of first cousins.
In the provincial capital, Qurgonteppa, nearly 25 percent
of those registered as having been born with birth defects came from
consanguineous marriages.
In addition to the registration effort, Khatlon health
authorities have launched an awareness campaign that deploys teams of doctors
to educate parents and young adults about the potential risks of consanguineous
marriages to future generations. To give the campaign added weight, influential
imams have been brought in by Khatlon authorities to help spread the word.
Rahmon Weighs In
The efforts in Khatlon followed a January speech by
President Emomali Rahmon in which he expressed concerns about what he described
as a "rise in marriages between blood relatives."
Addressing the outgoing parliament, Rahmon estimated that
there were "about 13,000 disabled children in Tajikistan who rely on state
support," and that many of them were born to consanguineous marriages. He
then instructed the Health and Social Affairs ministries to work out viable
options to prevent such marriages.
The speech rekindled debates that began in 2013 when
Saodat Amirshoeva, a prominent former lawmaker and staunch critic of marriages
among relatives, convinced parliament to draft a bill outlawing such unions.
The bill never made it to a parliamentary debate, and a
working group set up to finalize the details was suspended indefinitely after a
few meetings.
"Back then authorities said we didn't have the
mechanisms and institutions in place to implement such a ban," Amirshoeva
recently told RFE/RL's Tajik Service.
Rahmon's recent support gives the stalled initiative a
lifeline, according to Amirshoeva.
She notes that "it's a tradition in Tajikistan that
no one does anything until the president instructs it," concluding that
his comments mean that Tajikistan has never been as close to banning marriages
between cousins.
Religious Backing
Within days after Rahmon's speech, Tajikistan's Islamic
Center head Faizullo Barotzoda backed what he called the "thoughtful
initiative" by Rahmon aimed at "improving the nation's knowledge,
health, capabilities, and quality of life."
But other religious figures have questioned whether
banning marriages between cousins would solve anything.
Nuriddin Turajonzoda, an influential cleric, says the
potential health risks are vastly exaggerated, saying that "studies show
that only 3 or 4 percent of the disabled children were born to consanguineous
marriages."
Turajonzoda has called for all couples to undergo
government-sponsored genetic and medical screenings before their marriages are
registered, adding that their union should be discouraged in the event the
tests revealed potential health risks for their children.
He adds that "Islam doesn't either ban or promote
cousin marriage" -- noting that Islamic scholars have historically
encouraged young people to marry strangers in the belief that such marriages
bring good children. "At the same time," he says. "We are
against such a ban."
Worldwide, an estimated 1 billion people
live in communities where consanguineous marriages are preferred. and such
unions are common in Tajikistan and Central Asia.
The practice has long been associated with greater
birth-defect risks, and various studies have considered consanguinity as a
cause of birth defects.
The most recent and largest study to date -- the
Britain-based study "Born in Bradford" -- confirmed that children
whose parents are first cousins are twice as likely to be born with birth
defects.
Family Tradition
Ending the centuries-old tradition would not be easy.
In many cases, the marriages involve well-to-do families
that don't want outsiders inheriting their wealth, and the unions are seen as
more stable because they enjoy support from parents, relatives, and community.
Zebo Karimova, a housewife from Khatlon, knows from her
family's experience that marrying cousins can lead to devastating consequences.
Karimova is a caregiver for her five-year-old grandson,
Anisjon, who suffers from a rare and incurable genetic condition that has left
him unable to walk.
Anisjon's parents were first cousins.
Anisjon's father subsequently divorced his wife, blaming
her for "giving birth to a sick child," and Karimova is wracked with
guilt.
"I married off my daughter to my sister's son to
have even closer family ties, but we didn't know there are health risks
involved."
In southern region of Qurgonteppa, a former desert land
where settlers were relocated by Soviet authorities in the 1930s,
consanguineous marriages helped people retain their native traditions and
dialects.
Breaking from tradition is frowned upon.
"My marriage nearly collapsed under pressures by my
in-laws, who didn't want a stranger in the family," says Malika, who
didn't want to give her full name.
Before banning marriages between cousins, she says,
authorities should work on changing society's mindset.
Written by Farangis Najibullah with reporting by RFE/RL Tajik Service
correspondents Orzu Karim and Tohir Safarov.