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ALBINISM - UN PRELIMINARY REPORT - DISCRIMINATION - HUMAN RIGHTS - WOMEN & GIRLS

 

FULL REPORT:

http://www.ohchr.org/EN/HRBodies/HRC/RegularSessions/Session24/Documents/A_HRC_24_57_ENG.doc

 

United Nations

A/HRC/24/57

General Assembly

Distr.: General

12 September 2013

 

Original: English

 

 

 

 

 

 

Persons with Albinism

Report of the Office of the United Nations High Commissioner for Human Rights*

Summary

       This preliminary report of the Office of the United Nations High Commissioner for Human Rights on the attacks and discrimination against persons with albinism is submitted pursuant to Human Rights Council resolution 23/13 of 13 June 2013.

       In some communities, erroneous beliefs and myths influenced by superstition put the security and life of persons with albinism at risk.

       OHCHR has received information from various countries on cases of killings and dismembering of persons with albinism for ritual purposes. It has also collected information on the multiple and intersecting forms of discrimination persons with albinism face worldwide.

       States should adopt specific measures to protect and preserve the rights to life and security of persons with albinism, as well as their right not to be subject to torture and ill-treatment, and ensure their access to adequate health care, employment, education and justice.

 

 

Albinism is a rare, non-contagious, genetically inherited condition present at birth. In almost all types of albinism,[1][1] both parents must carry the gene for it to be passed on, even if they do not have albinism themselves. The condition is found in both genders, regardless of ethnicity and in all countries of the world.

Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. As a result, almost all people with albinism are visually impaired and are prone developing skin cancer. There is no cure for the absence of melanin.

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Discrimination against women and children

74.          Women and children with albinism are particularly vulnerable as they are exposed to intersecting and multiple forms of discrimination. In addition, children are particularly targeted for ritual killings (see para. 21 above) and women with albinism are sometimes victims of sexual violence.[2][2]

75.          The Committee on the Elimination of Discrimination against Women has referred to women with albinism as a group of women in a vulnerable situation, meaning that they are at risk of being victims of multiple discrimination.[3][3] According to the Special Rapporteur on violence against women, its causes and consequences, violence against women is deeply rooted in multiple layers of discrimination and inequality. As these layers of discrimination intersect, violence against women intensifies. Addressing systematic discrimination and marginalization is crucial to ending violence against women (see A/HRC/17/26). In her 2012 report to the Council, the Special Rapporteur included witchcraft-related killings under gender-related killings (A/HRC/20/16, paras. 14 and 16).

76.          The Committee on the Rights of the Child has also expressed serious concerns at reports of killings of and attacks against children with albinism, addressing this issue under the right to equality and non-discrimination (art. 2 of the Convention), among other rights. In the case of Burundi, the Committee expressed concern in its concluding observations that “de facto discrimination of children prevails [in the country] and is tolerated in the State party vis-à-vis … albino children” (CRC/C/BDI/CO/2, paras. 29 and 30). The Committee encouraged the State party to review legislative instruments and adopt a comprehensive strategy, including awareness-raising, to eliminate discrimination on any grounds and against all vulnerable groups, particularly children with albinism (ibid.).

 



 

Direct Link to Full 2013 Report

 

Discrimination against women and children

74. Women and children with albinism are particularly vulnerable as they are exposed to intersecting and multiple forms of discrimination. In addition, children are particularly targeted for ritual killings (see para. 21 above) and women with albinism are sometimes victims of sexual violence.[4][1]

75. The Committee on the Elimination of Discrimination against Women has referred to women with albinism as a group of women in a vulnerable situation, meaning that they are at risk of being victims of multiple discrimination.[5][2] According to the Special Rapporteur on violence against women, its causes and consequences, violence against women is deeply rooted in multiple layers of discrimination and inequality. As these layers of discrimination intersect, violence against women intensifies. Addressing systematic discrimination and marginalization is crucial to ending violence against women (see A/HRC/17/26). In her 2012 report to the Council, the Special Rapporteur included witchcraft-related killings under gender-related killings (A/HRC/20/16, paras. 14 and 16).

76. The Committee on the Rights of the Child has also expressed serious concerns at reports of killings of and attacks against children with albinism, addressing this issue under the right to equality and non-discrimination (art. 2 of the Convention), among other rights. In the case of Burundi, the Committee expressed concern in its concluding observations that “de facto discrimination of children prevails [in the country] and is tolerated in the State party vis-à-vis … albino children” (CRC/C/BDI/CO/2, paras. 29 and 30). The Committee encouraged the State party to review legislative instruments and adopt a comprehensive strategy, including awareness-raising, to eliminate discrimination on any grounds and against all vulnerable groups, particularly children with albinism (ibid.).



 

 

 

 



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     [1][1]         The exception is one type of ocular albinism, which is passed on from mother to son.

     [2][2]         Submissions from Albinos Sans Frontières, Bien-être des Albinos de Côte d’Ivoire, Confédération nationale des Albinos de Guinée, Association des femmes albinos “Espoir”, Écran Totale and UTSS.

     [3][3]         In its concluding observations on the United Republic of Tanzania, the Committee expressed concern at reports that women and girls with albinism had been targeted in ritual killings, recommending that the State party protect them (A/63/38, paras. 142–143). See also Committee on the Elimination of Discrimination against Women, general comments Nos. 12, 19 and 28.

     [4][1]         Submissions from Albinos Sans Frontières, Bien-être des Albinos de Côte d’Ivoire, Confédération nationale des Albinos de Guinée, Association des femmes albinos “Espoir”, Écran Totale and UTSS.

     [5][2]         In its concluding observations on the United Republic of Tanzania, the Committee expressed concern at reports that women and girls with albinism had been targeted in ritual killings, recommending that the State party protect them (A/63/38, paras. 142–143). See also Committee on the Elimination of Discrimination against Women, general comments Nos. 12, 19 and 28.